#1 01-12-2010 08:51

Ceres
Hairy nippled Bimbo
Ceres
From: France sight
Registered: 10-13-2008
Posts: 8094

Living with Autism

This thread is for people diagnosed with autism or a spectrum of autism and family members or close friends of someone with it. We're here to support one another!

My son was diagnosed a year and a half ago with a spectrum of autism, PPD(pervasive developmental disorder). When I heard this I just about thought the world had ended. But now I know that there is hope, it's just a harder road sometimes and requires a bit more love! My son is enrolled at school now(Early Childhood) with kids who are developmentally behind as well(not necessarily autistic). It's doing really well for him. He's actually reading, knows his shapes and colors, and counts up into the 300s! The only thing I have had a real issue with is potty training. He's almost five and still wets his pants. I went cold turkey on his diapers and he still refused to go to the potty. Today though I think I had a break through with it. I made pictures to hang on his wall of things we do all day. Like play, eat, nap, school, bedtime, etc. I made one for potty as well and he's picked up on what the signs are quickly. When I change the sign on the wall he does it! Maybe he's a visual learner with this whole potty thing! I've also made a sticker chart for when he's been well behaved. He's also ADHD so his behavior can get bad sometimes. If something changes and he doesn't like it he'll throw himself on the floor and scream. He has a LOT of trouble with transitioning from one activity to the other. The pictures seem to help with this though, so I'm going to reward him for it. Once he gets 8 stickers we'll go get him a little hotwheel car to add to his collection or a book he likes. smile

If anyone has advice on how to raise a child with PDD and ADHD it's most appreciated. I'd also like to hear some stories from everyone else with this spectrum or others. It helps me to see how my son's life may be when he is older.

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#2 01-15-2010 00:11

Borsika
Dandruff Bimbo
borsika
Registered: 06-05-2009
Posts: 3907

Re: Living with Autism

Hey, Ceres!

I really want to write from my heart but it will be hard for me as I'm not native so grammar will keep me on chains.

I've read lot of books about autism and autistic syndromes as when I graduated I wrote my diploma about Autism in family.
I saw many kids and parents "fighting" with autism and all I can say it is a really hard but strenghten life for both.
I hope you'll learn soon many more things about your son and his life, read as many books and articles as you can. You may find a forum for parents to support eachother as well, I found one in Hungary when I did my diploma.

Visualization and stickers are always great ways to let him learn (and show daily) stuff of our world to help him living his world easier. If you write a "diary" about all ADHD troubles you've got you may find easier what causes the behavior (it might be the smell, color or taste of something as well as a noise).

Keep strong and learn eachother!

*all best wishes and a great hug*
Borsika

Edit:typo

Last edited by borsika (01-15-2010 00:12)

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#3 01-16-2010 00:42

Ceres
Hairy nippled Bimbo
Ceres
From: France sight
Registered: 10-13-2008
Posts: 8094

Re: Living with Autism

Thanks so much for the idea, I just may do that. smile It sounds like a good idea for my daughter as well who is going through terrible twos! A diary for both would help my husband and I see what causes a tantrum and we can discuss how we can better handle it. smile

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#4 01-16-2010 00:59

Borsika
Dandruff Bimbo
borsika
Registered: 06-05-2009
Posts: 3907

Re: Living with Autism

http://api.ning.com/files/DkFC0WZ01iAox1FxlVk50k32qePEk7ZD93FXuihNzgdHQpRu7fmtU7Vr-JClyp-i1aQx2dljjEPB*xaxl*2eC-xxs9VXI7v*/FridayHugs.jpg

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#5 01-24-2010 13:45

Lischu
Newbie Bimbo
From: Helsinki
Registered: 11-04-2009
Posts: 33

Re: Living with Autism

Hi!

I have been diagnosed with Aspergers, ADD and prosopagnosia (face blindness.)
My mother actually suspected it from very early age, but I was diagnosed only after I read about it myself and knew it was me. I was 17 at that time.
So I have gone through normal school without any help for my whole life. This has taught me a great deal and I personally believe that when ever it's possible try to keep your son surrounded by "normal" people. I believe it is easier to learn how to behave within the social norm is to be "one of the normals".
This is what worked for me and it might not be the best for all. But I can say that it has worked so well for me, that at this point of life I can do anything and even the professionals might not notice there's anything wrong with me. (This has actually happened. my best friends mother does the diagnosis as her profession but she almost didn't believe I had it when I shortly met her this summer. and yes against all odds I do have a best friend which is not very common for autistic people.)

The best you can do is to encourage.
I like to think that it's not a disorder despite the name. I think of it as a good mutation and a gift. Being socially awkward is just the price I have to pay for my other kind of brilliance. I have many strenghts that are typical to autism spectrum and I try to use them as much as I can.
So instead of telling your son it's something bad try telling him all the good sides it can bring and most of all you should also remember these. smile There are tons of very successful people with autism spectrum disorders and some are considered the best of their kind.

If you feel like you need any kind of help please feel free to ask. smile

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